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POC Survey 2008 Results

TOOLS FOR LIVING 
WITH LTOT

What exactly is Home Oxygen Therapy, How do you use it, and what are the benefits? 
Article >>

COPD Prevalence of Anxiety and Depression in Patients with Severe COPD: Similar High Levels with and without LTOT
Article >>

A Message from NHLBI:
Introducing
“COPD Learn More Breathe Better Update”

The National Heart, Lung, and Blood Institute wishes to thank you, our friends and partners, for your many contributions to the early successes of the COPD Learn More Breathe Better campaign.  We have received great feedback regarding the informal campaign ‘e-mail updates’ distributed over the past few months.  In response to your requests, we have developed
COPD Learn More Breathe Better Update!.
Article >>

EFFORTS (Emphysema Foundation For Our Right To Survive) has an amazing email digest.  Daily e-mail discussions with people who suffer from COPD and some doctors as well. It helps to talk to others who are in the same place you are or who have been there and can help you through it! 
Article >>

ANSWERS Dr. Tom Petty answers any questions you may have about lung health. 
website >>

ICC (International COPD Coalition) The ICC is a nonprofit organization composed of COPD patient organizations around the world, working together to imporve the health and access to care of patients with chronic obstructive pulmonary disease (COPD) 
website >>

Helpful Videos A series of videos designed to help those with COPD lead a more productive life.  
link to videos >>

Benefits CheckUps Benefits CheckUp quickly finds federal, state and private benefit programs available to help you save money on prescription drugs, health care, utilities, taxes, and more.  
website >>

Caution to Oxygen Users Feb 5, 08
Terry deBruyn, RRT, Nonin Medical, Inc.
>>
  PATIENT STORIES

EDNA
Edna shares her life with COPD and how she got to where she is today.

JEANNINE
A look into a struggle to find the right oxygen for her.

 

 

MARTY COMING SOON


Resources for Patients - TRAVELING
        
This section is intended to offer patients education and resources regarding traveling and oxygen treatment.

This is an organization that helps people locate O2 suppliers when you are traveling.  Call 866-693-3012 or 1-800-642-6063, with one phone call, you can arrange for oxygen or other medical equipment needs before you leave home, and know that you'll be taken care of at each stop on your itinerary.   Freedom Link® is a 24-hour a day services for traveling and relocating patients. Freedom Link® works because it is a division of The VGM Group , the largest network of independent HME dealers in the U.S.  Freedom Link® provides peace of mind, and all you have to do is enjoy your trip!

Oxygen and Air Travel           Oct 2, 2008
by Joseph Lewarski, BS, RRT, FAARC
>>
http://www.hmetoday.com/issues/articles/2008-07_07.asp?mode=print

Flying with Oxygen           June 10, 2008

On June 3rd, Vlady Rozenbaum, Ph.D. attended the DOT 2008 Disability Forum, an annual, all-day event by invitation only. The topic was "Working Together to Improve the Air Travel of Passengers with Disabilities." The purpose of the forum was to
discuss the Department's Air Carrier Access Act (ACAA) rulemaking intended for completion in early 2008.  As you may know, from November 2004 to February 2006, the Department of Transportation issued three notices of proposed rulemakings (NPRM) to amend its rule implementing the Air Carrier Access Act  - an NPRM proposing to extend the Department's air carrier disability rule to foreign air carriers (69 FR 64364), an NPRM on medical oxygen and portable electronic respiratory assistive devices (70 FR 53108), and an NPRM on accommodations for passengers who are deaf, hard of hearing and deaf-blind (71 FR 9285).  The Department plans to issue one complete rulemaking on these three pending proposed rules.  At the forum, the major provisions of the rulemaking were explained and the attendees had an ample opportunity to discuss concerns, share experiences and ask questions.

This forum was the fifth in a series of forums hosted by the Department to
facilitate joint efforts to improve the air travel of passengers with disabilities.  As with the previous forums, this forum provided disability
community organizations, representatives of the airline industry, airport
authorities, airport associations, airport service contractors, and
government officials an opportunity to have an exchange of ideas and explore ways of making accessibility to air travel a reality for all.

With regard to flying with oxygen, one of the panels focused on Portable
Oxygen Concentrators (POC) and Other Respiratory Assistive Devices; FAA
regs/guidance on POCs; and the PHMSA [Pipeline and Hazardous Materials
Safety Administration] regs/guidance on lithium battery transport. From now
on the FAA will not be specifically approving the new POCs. Instead each
airline will make the decision as long as the device meets the FAA
requirements. At this time there is only one new applicant for an FAA
approval: Central Air by Delphi (we have posted about this POC). During the Q&A period I suggested free oxygen for passengers based on my experience with the Polish Airlines LOT, which offers it. I also asked for the
consideration of liquid oxygen portables. Later I talked to Blane Workie,
Chief, Aviation Civil Rights Compliance Branch, OAEP. In response to my
comment that POCs are expensive, she stated that Lincare rents Inogen for
$75 per week. I told her that Inogen does not provide sufficient amount of
oxygen for some users, so there must be other options explored as there are similar problems with other POCs. I will talk to her more about this issue
in the coming days.

Sometime in 2009 there will be a SNPRM issued on other issues related to
accommodations of disabled passengers. Hopefully, it will include the free
oxygen and liquid oxygen issues. It will certainly include suggestions for
the in-flight entertainment system; rules on service animals (safety
concerns); ticket kiosks at the airports (fully accessible to handicapped
passengers); and website accommodating persons with disabilities. These
issues were pushed very hard by attendees from a number of disability
organizations (blind; deaf; mentally handicapped, etc.). They, in fact, were
very visible and vocal at the forum (they also appeared to have known
personally all of the DOT officials present at the meeting). There were only
a few reps from the lung diseases. I noticed only an official from the ALA
and the lobbyist for the COPD Foundation. Now wonder our issues are pushed aside or put on the back burner. There was hardly any discussion of the oxygen issues during the Q&A period, but there was a lot of talk about the proper captions on films shown during flight and the type of entertainment that should be provided.
We have still a long way to go.....Vlady Rozenbaum, Ph.D.
 

Portable Oxygen - A User's Perspective
http://www.portableoxygen.org/

Air Travel with Oxygen - U.S.A
http://www.lungusa.org/site/pp.asp?c=dvLUK9O0E&b=23052

Sea Puffers - Cruises for COPDer's
http://www.seapuffers.com/

Traveling with Oxygen - Canadian Lung Association
http://www.lung.ca/diseases-maladies/copd-mpoc/living-vivre/travel-voyages_e.php

Airline Oxygen Availability
http://www.emphysema.net/airline_oxygen.htm
 

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