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A patients perspective on POCs
        

A patient's perspective of POC's, Portable Oxygen Concentrators

By Roxlyn G. Cole

"Lyn" Age 69. I was diagnosed with COPD on Valentine's Day 2003. Components included small amount of bronchitis & asthma, but the largest factor is bullous emphysema. Categorized as borderline mild/moderate obstruction: FEV1/FVC ratio = 57%, DLCO -diffusion, circa 60%. That means obstructed airways AND trouble getting oxygen from the lungs into the blood. Supplemental O2 24/7 = my energy and lifeline.

Last summer 2007, as a volunteer working for a magazine, I accepted the assignment to evaluate several portable oxygen concentrators, they were generously on loan from Respironics and Inogen Inc. The third one, a SeQual Technologies Eclipse, belonged to me. The FAA had recently approved use of these newly developed portable oxygen concentrators. I tested this collection of POC's, using them with several oxygen delivery systems: cannulas, Oxyview Glasses www.oxyview.com , and also with a TTO Scoop, (delivery of supplemental O2 through the neck direct into the trache) www.tto2.com ) I was able to close off my tto and use a cannula for testing purposes. Since I live at almost 5500 ft elevation, my oxygen needs are generally higher (as would patients needs be greater on an airplane pressurized to 8500 ft.

My recommendations:

Hold off! Delay purchase of these big ticket items until you can try them out while walking, or better yet, while exercising. Be sure the machine of your choice provides the Oxygen necessary to maintain your O2 saturation at an adequate level while you go up in altitude. Testing at lower altitudes will not demonstrate how well a machine will work for you in an airplane, where generally the cabin air is pressurized between 5500-8500 ft.

Consider your needs. Consult with your doctor about sleeping with pulse dose delivery. Do you use a CPAP or Bipap? These do require constant flow, and do you need a humidifier bottle? I do especially with a TTO. It is said one can sleep on pulse mode, but in my experience, this disturbed my sleep.

Settings are just a number, we shouldn't expect the same results from a number on the dial of a different type machine. Setting numbers on POC's do not mean liters like on your liquid or compressed gas O2 portables. POC's deliver around 90 % (+/-3%) oxygen...and Liquid O2 or compressed gas O2 is 99% pure. Only the Eclipse has a setting equal to liters on its constant flow setting.

POC'S help MANY patients, but there are Exceptions: If a patient requires 3 L at sea level just to sit, oxygen needs might not be met with moving around on the airplane/at altitude.. I believe from my experiences in Colorado altitude, that if a patient requires 3 liters per minute for slow moving or sitting, they should be certain that the # 4-5-6 settings will work for them as they move about. If 4-6 barely works at sea level it is probably NOT going to keep one at adequate O2 saturation levels at 8500 ft altitude.

Keep in mind this major factor; my tests were done at altitude.

Also realize you might have very different results in the oxygen saturation levels you achieve. Patient's all have different oxygen saturations because of individual differences /components of their disease. OBSERVE the TREND of the delivery numbers in my charts that show more or less for each machine and note the number setting. # 1 or # 2 didn't do much for me.

Two Nonin oximeters were used during testing: Medical prescription "Onyx II" and the "Sportstat" for mountain climbing. Both read out the same or within 1 % point.

Charts e-mailed upon request: roxlyngcd@comcast.net or they can be viewed on my Pulmonary Rehab Advocate blog. http://360.yahoo.com:80/roxlyngcd

Instruction manuals: There is much to remember, many signs/symbols to recognize, and certain warning alarms sounds that must be understood. The conditions of operation must be recognized, too cold or too hot to use, all machines are different. Bob McCoy of Valley Inspired Products put it the right way by saying these machines like to be in the same environment that YOU prefer. Chilling or roasting in a car is "detrimental" to its operation. Each POC has a different temperature range for use or storage, and a warm-up time for building up to their max level of oxygen purity for delivery.

Warm up times can be as little as 5 minutes for the Eclipse, 10 minutes for the Evergo, and up to 30 minutes for the Inogen. That 30 minutes surprised me, so an additional plan is to have it warmed up before you leave the house in order for it to provide oxygen delivery up to specs. ALWAYS have a manual with you.

Weight: NONE of these POC's would easily be carried in hand for any *appreciable* length of time... at least I wouldn't want to carry them. All were best in their carts, 12+ lbs gets heavy fast. Lifting the Eclipse (close to 20 lbs including its cart) in and out of the car wasn't difficult for me. The Inogen with accessories in the attached bags is around the same weight. The Evergo is some what easier to lift into the car. A frail patient might have difficulty lifting these into a car. Just one more good reason to exercise with small weights to build strength.

The Inogen One: pulse only, has an extra accessory to allow 100 ft. of tubing. This "satellite conserver" boosts the oxygen for the longer tube length and may cost an additional $295.00 to $495.00. It attaches to one's belt or hangs around the neck. I found it a nuisance, it would slip off its belt clip, but, it did work extremely well in delivering the oxygen 100 ft. With a TTO, this satellite "booster" had such a hard pulse as to be a tiring pulse impact in my neck. Professional test charts indicate the Inogen One delivers the lowest quantity of O2 per pulse. Currently it is the most expensive POC. In this group it is the quietest one.

The Evergo: pulse only, will work with 30 foot tubing without any extra accessory. . It is a great rugged little machine, easy to use. Holding 2 batteries internally it lasts longer without battery changing (up to 8 hours on #2), and delivers a better quantity of oxygen per pulse. It is lighter weight, and much less expensive than the Inogen. If I didn't need the constant flow at night I would seriously consider this machine. If I had a constant flow oxygen source at my destination I would use the Evergo, because of the smaller, more compact size, easier to store under the seat on an airplane. I even carried it in a backpack, but it is somewhat noisy for that close up to it.

The Eclipse: both PULSE and constant flow, can use 50 ft. tubing without any special accessory, just a press to change to its CONSTANT FLOW setting, and, it delivers 1- 3 full Liters CONSTANT flow - whether on a 7 ft. cannula or 50 feet of tubing. Pulse setting 1-6, will conserve oxygen use, making battery operation last longer, however, I found that on # 6 Pulse dose the battery lasted approximately the same duration of time as on 3 L on constant flow.

This machine has the largest and best quantity of oxygen per pulse. It is the least expensive in this group, and the cart design with large wheels allows it to go where the other small wheels drag. Its only drawback is larger size and weight, which with wheels, it doesn't matter. It will deliver more oxygen to maintain better blood oxygen saturation (sats). WONDERFUL for me! It hums on different settings, fits in with room sounds.

All POC's offer the wonderful option of recharging when there is access to an A/C-wall plug, or while in your car on the car battery. This is FREEDOM, because you can be in a traffic jam, delayed waiting for an appointment, or just change plans and stay over night with the portable oxygen concentrator…the POC, really is a package of freedom.

Some potential problems would include: inability to recharge it, a long electrical outage, no wall plug or car battery handy, or malfunction.

HAVE BACKUP Oxygen available even with these POC's. I store a few compressed gas E cylinders in my car, and a small over the shoulder sling carrier with a small compressed gas bottle. The beauty of compressed gas O2 is it doesn't evaporate.

I found that after a while, I only used the POC unit for travel or a very long day out of the home, when I was uncertain of return time. Small Liquid or compressed portables are more quiet, lighter weight, but they do run out, and they aren't allowed on air planes. Thus, the need for FAA approved POC's for air travel. These machines in my opinion qualify as a luxury item, unless you travel very frequently.

At home my preference is to use my liquid oxygen reservoir. It is quiet, cool and doesn't increase my electric bill. The POC's do run more efficiently than the larger older stay at home concentrators.

I am so glad I have one, for ground travel and just in case I fly someday.

Lyn
Roxlyn G Cole, roxlyngcd@comcast.net
http://360.yahoo.com:80/roxlyngcd

 

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